Christopher
Age 4
Batson Children’s Hospital
Barth Syndrome
With the world as his stage and his smile the main act, Christopher is the ultimate actor. His funny, sweet and outgoing personality has many only seeing a well little boy. However, offstage Christopher endures countless medical procedures to treat Barth syndrome, a rare genetic condition.
As the first child in Mississippi diagnosed with this ailment, Christopher continues to defy the odds. He has a lot of energy, but tires quickly because of his health setbacks. Yet this doesn’t get him down. Christopher loves horses and playing with his brother.
Even though he deals with neutropenia, muscle weakness, labored breathing, a poor appetite and slow weight gain, doctors have been awed by his progress. Despite his early struggles, Christopher has maintained an attitude that leaves his family and everyone around him applauding. You can follow his story and read more of his background at www.caringbridge.org/visit/cj08.
Wednesday, April 25, 2012
Children's Miracle Network Hospitals Champions
Champions is a Children's Miracle Network
Hospitals program that brings attention to the important work being done at its
170 children’s hospitals. It does this by honoring 54 remarkable kids who have
faced severe medical challenges, and helping them tell their stories.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
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